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A23

A23A23 EUROCAT Registry


Study Title A23 EUROCAT Registry
Data Owner Health Service Executive (www.hse.ie)
Description Basic demographic data, data on all congenital anomalies and, where possible, data on exposures to factors that may affect the development of congenital anomalies (e.g. folic acid).
Primary Function Surveillance of congenital anomalies in the East of Ireland. Two other HSE (EUROCAT) regional registers provide surveillance for the South East and South.
Key Variables ID Other; Age Other; Sex
Themes Health
Unit Of Observation Individual case (on an anonymised basis)
Frequency Continuous
Target Population Individual case (on an anonymised basis)
Format Separate record for each case
Method Multiple sources of ascertainment; data computerised.
Most Recent Publication 2011. See: - Sutton, M., Mills, J.L., Molloy, A.M., Troendle, J.F., Brody, L.C., Conley, M., McDonnell, R., Scott, J.M. and Kirke, P.N. (2011) ‘Maternal folate, vitamin B12 and homocysteine levels in pregnancies affected by congenital malformations other than neural tube defects’, Birth Defects Research Part A: Clinical and Molecular Teratology, Vol. 91, No. 7, pp. 610-15. doi: 10.1002/bdra.20817 See also: - Loane, M., Dolk, H., Morris J.K. and EUROCAT Working Group (2009) ‘Maternal age-specific risk of non-chromosomal anomalies’, British Journal of Obstetrics & Gynaecology, Vol. 116, No. 8, pp. 1111-19. - Leoncini, E. et al (2008) ‘Frequency of holoprosencephaly in the International Clearinghouse Birth Defects Surveillance Systems: Searching for population variations’, Birth Defects Research Part A: Clinical and Molecular Teratology, Vol. 82, pp. 585-91. doi: 10.1002/bdra.20479
Access Further Information Directly from EUROCAT Registry, contact: Dr. Bob McDonnell, EUROCAT Registry, Health Service Executive, Room G29, Dr. Steevens Hospital, Dublin 8. or via the EUROCAT network website: www.eurocat-network.eu/ or via the International Clearinghouse Birth Defects Surveillance Systems website: www.icbdsr.org
Notes Data are anonymised and only analysed on an aggregate basis. Data are collected according to standardised EUROCAT methodology and are comparable with that of the two main congenital anomaly networks of which the Registry is a member, EUROCAT and the International Clearinghouse Birth Defects Surveillance Systems.
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